FPIES

Since Sophia was born I have learned more than my fair share about milk intolerance, soy intolerance, MSPI  (milk soy protein intolerance), food allergies...the list seems to go on and on. Because some of the wonderful ladies on babycenter.com have provided me with some extensive literature  and not so subtle nudges, I have been researching FPIES.

 Food Protein Induced Enterocolitis Syndrome

Described as this (taken directly from http://www.thefpiesfoundation.org/)

Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profuse vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be immediate and do not show up on standard allergy tests. Furthermore, a negative allergy evaluation may delay the diagnosis and take the focus off the causative food. Nonetheless, FPIES can present with severe symptoms following ingestion of a food trigger.



It pretty much fits Sophia to a T.  The weird allergies (bananas, peas and sweet potatoes) as well as the more common ones (milk and soy). 

I forgot to mention in my earlier post that when presenting our pediatric gastroenterologist with the basic information on non- IgE allergies/FPIES he agreed 100% because of the severity of Sophia's reactions and the negative RAST testing. He said without a doubt that it IS allergies. 

There is a pediatric allergist who specializes in FPIES right here in Michigan, albeit 1.5 hours away but no way am I putting a limit on the care she receives! Just hoping the insurance will cover it!