As this week is coming to an end I am finding myself relieved. This has been one stressful week! Not that this week ending is going to be some magic solution, but I am hoping that this coming Monday will be the answer to our prayers!
It started getting bad on Saturday night. We had noticed her medication not working as well as it should have been. After researching online and talking to the pharmacist, I found out that because her medication is compounded that it loses effectiveness after 7-10 days and really needs to be filled every 2 weeks not once a month. Consequently her tummy was getting extra acid and causing her more and more discomfort.
By Sunday night it was unbearable, for her and us! She was screaming in pain and ceased eating because of it. What little we could get her to take she was projectile vomiting it right back up at us before she had time to absorb any nutrients. It was the worst feeling, seeing her in pain and not being able to help her in any way. By 3am she and I were both exhausted and crying. PJ took over and I went to bed.
By 9am Monday morning it had been 12 hours since Sophie had kept ANYTHING down and hadn’t had any wet diapers. PJ and I were at our wits end. I called the doctor’s office and spoke to the nurse, desperate for any help she could give. We had to take Sophie to the office at 2 to be seen. Luckily Jerri agreed to go with me. The doc decided to schedule an ultrasound of Sophie’s belly to see if she has pyloric stenosis. She also TRIPLED Sophie’s medication and ordered it to be filled biweekly. Which in a way is good, because it will STAY effective… but the insurance won’t cover the medication and $40 monthly was a lot and now that it is $40 biweekly, it’s almost undoable. But I can’t see my baby in pain!
Fast forward to this morning and Sophie had her ultrasound. She had to not eat 4 hours prior and they expected her to NOT cry while they performed it. Sigh.
Now all there is left to do is my FAVORITE thing…wait… We should know the results of the ultrasound tomorrow sometime. We are also waiting for Monday, for our trip to the GI doctor. I am losing what little patience I do have; I don’t know how much longer I can stand to see her miserable. I am terrified there is something seriously wrong and the doctors just aren’t catching it.
So for now we wait, and pray, and try to make her comfortable.
No comments:
Post a Comment