After many tests:
- blood work
- abdominal ultrasound
- head CT
- upper GI
- more blood work & cultures
- echo
- complete skeletal scan
- physical therapy 2x
The doctors decided that Sophia has colitis, an inflammation of the colon (and shedding of its protective inner layer), due to milk and soy protein allergies. They are keeping her on Neocate formula for this and they don't expect her to outgrow it by 1yr like they thought.
She has bad GERD (reflux). They watched her GI and on her "bad" reflux times she refluxed all the way to her ears! So they added a 2nd medicine and so far, SO GOOD! It has been helping. She is on 1 acid reducer 2x a day and 1 acid neutralizer 2x a day.
She also has a kidney & UT infection. They were worried it was sepsis but said they got it under control in time. She was on IV antibiotics for 48 hours and will be on oral antibiotics for 14 days. At the 14 day mark they will do an ultrasound to check for scarring and to make sure the infection is gone. She has to lay low for 2 weeks to heal, and to ensure she doesn't get a secondary infection.
Because Sophia is on such special formula, which doesn't have vitamins (like vitamin d from milk), she is deficient. So she has to be on vitamins 2x daily for the next 8 months.
We are going to have to print off a schedule/checklist for every day!
We are praising God that she is doing so well now and that we have a diagnosis!
We want to thank each and every person for everything they did, even if it was "just" pray. We are thankful for such love & support.
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