Bubble Girl

Our struggles with Sophia are getting, for lack of a better word, interesting.

It’s always nice scary when the nurse tells you that they are going to wait to discuss it any further because they don’t want to scare us with the possibilities.

Well the blood test came back last night and we received the results. The RAST test came back normal (DUH! We knew she had non-IgE mediated food allergies) and her CBC is normal. The trouble began when I flipped the page and saw that there were 3 highlighted portions letting us know she is low in her IgG, IgA and on the threshold for her IgM.

First thing this morning I called the GI’s office to see if they had gotten the results and if they needed to be forwarded to the doc at the conference. She said yes they got them and yes she was sending them to him and when he responded she would call me. She expected it to be after lunch before we heard from him.

I received a phone call 20 some minutes later. She explained that the Doc looked over the results and that Sophia is immunocompromised, meaning her immune system isn’t working properly. They explained that she is being referred to an immunologist and they will have a better idea of the why’s but for now she said that we needed to see our primary doctor to have Sophia looked over. She told us that when we get to the family doc that we needed to tell them that she can’t wait in the waiting room because she has a compromised immune system. We would also check in with them again after that appointment.

The appointment was useless but we did get medicine because Sophia has a yeast rash (again). They just told us that the immune system works like this and don’t take her to public places where she can get sick….oh and wash our hands a lot. <- I knew that! And we went home.

I am so glad that the nurses (and the GI) took the time to really explain what we should/shouldn’t be doing right now; last thing I wanna do is screw this up and end up getting her sick!

For now we have to:

Not take her to public places.

Frequent hand washing and hand sanitizer for everyone in the house.

Keep common areas of the home wiped down with Clorox wipes.

No sick visitors (or recently sick)

No church, daycare, school etc

Stay away from common allergens, smoke and keep water out of her ears.

When I asked (Yes I know I probably shouldn’t have!) more of why they thought she had such test results. She told me that it could be auto immune diseases…something about bone marrow and then said that it’s best not to scare me and just wait for the immunologist. Well consider myself scared!

I know that besides the really bad yeast rash (which came out of nowhere and went from nothing to really bad in a matter of hours) and her normal food/reflux issues she seems to be currently healthy.

Praying we can get in quick with the immunologist and get some answers!