Tuesday, September 11, 2012

Flares, Blood Test and Upper GI

Sophia's reflux starting flaring last week. It felt as though we weren't giving her meds at all! She screamed the horrible, ear piercing scream that we haven't heard since she was put in the hospital at 3 months old.

Several phone calls to the on call doctor this past weekend and we added yet another medication, Reglan, to the mix. I had mixed feelings about it, but as the doctor said it would help with motility and "in theory" push food along instead of allowing it back up, I was willing to try anything. But then in the back of my mind, my "mommy voice" kept telling me not to give her that medication.

Good thing too. She was prescribed the incorrect dosage, which COULD have caused involuntary, seizure like movements.

Concurrent with adding the reglan (which she never took) he upped her prevacid (again!) to her current weight and that seemed to do the trick!

We also decided to cancel her PH probe. We couldn't justify taking her off all her meds for 2 full days prior to the probe, having the probe put in at POPS (pediatric outpatient surgery), making her wear arm no no's and have the probe in for another 24 hours. Especially when the end result would not help her treatment plan in any way.

We have talked with the doctor (through the nurse, because he is away at conference) and he decided that she needs to have a full blood panel done again, which she is currently having done right now thanks to daddy (yep, I didn't wanna see my baby being poked again!) ...Doc ordered a regular blood panel, an immune system response (something or another) panel and a RAST blood test <- again. Which is pointless in my opinion, because she has non-IgE mediated food allergies (which is a fancy way of saying they won't show up on the RAST testing)

So now we wait for the blood test results, and an appointment with the GI to plan our next move, which will most likely be an upper gi/ endoscopy.

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