We started trialing pears on Sunday. It is the first food that Dr B suggested.
So far so good, which doesn't mean much,but it DOES mean that no immediate reaction is a good sign. Still could turn sour though. I don't mean to be pessimistic but I think any parent with FPIES is leery of trialing a new food, especially if the child has no safe foods.
I really just want SOMETHING for her to eat. I would really want something like white potatoes or coconut that way so many options are opened for her like flours, oil, butter etc so we can MAKE something. We are working our way there though, one food at a time.
Currently our NO list is as follows:
Milk
Soy
Peas
Sweet Potatoes
Carrots
Squash
Bananas
Green Beans
Rice
Wheat
Avocado
Our "Plan of action" for trialing new foods is"
1. Pears
2. Apples (again, since we weren't sure if there was a reaction)
3. Quinoa
4. white potato
5. Egg yolk
6. Spinach
7. Lamb
Like I said, I want to try coconut, so I will be asking the allergist if we can move that up the list. It opens up so many opportunities for her! I would love to be able to "make" something for her! I know, I know...one step at a time! The last thing I want to do is take 5 steps back since we finally have a baseline (even though its no safe foods!) of neocate and neocate nutra.
To fully understand how important it is to go slowly with FPIES kiddos, here is how we trial a food:
Day 1: a taste
Day 2: a larger taste
Day 3: 1/2 tsp
Day 4: 1 tsp
Day 5: 1/2 tbsp
Day 6: 1 tbsp
Day 7: a serving
Then only that food (adding no new one) for 2 more weeks, noting any symptom and promptly stopping if any negative reactions occur.
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