Updating

So Sophia had an unusually rough night. Makes sense now because she woke up puffy faced and alllll stuffed up. Poor baby. We knew this was coming with her immune problems and the fact that I am sick again too. Still doesn’t make it any easier.

Last week we saw our ped GI, he def redeemed himself! He researched FPIES and had questions ready to ask us. He was great. He suspects she also has fructose intolerance caused by the FPIES, but at this point we don’t know. He also called over and got the results of the xrays to check on her rickets (that the pedi ordered). Good news is the rickets has improved!

On an FPIES front: She passed pears!  Now she has been trialing white potato. We started with mashed potatoes, which she didn’t want any part of until I mixed a little formula in with it and have worked up to diced steamed potatoes. I ordered a product called CheeCha puffs, it is potato puffs! As long as we continue on this road, potatoes will be an easy pass and she can have something to take along with us! If only CheeCha puffs were sold in the US…that’s the tricky part! $ 13.70 on ONE bag of CheeCha puffs. But the lovely people over at CheeCha are sending us a bag to trial. I am hopeful!

Next we will trial coconut because that opens up coconut milk, oil, manna, flour ETC! It will be a great thing to have  (IF she passes it!) and after coconut we will trial egg. Hopefully we will be able to squeeze these two in before her big first birthday! IT will be cutting it close so who knows J I am just happy she has 2 foods to eat!!!!!

We are making the trial food list work for us.

All in all, she is doing good (with the exception of some nightly reflux and this newest sickness)